We learned today that Caden is allergic to Garlic and Onion. He woke up redder than usual this morning, which sent us looking for what could be going on. We did a CBC and his eosinophil counts are higher than they should be, which could be due to the antibiotic we began yesterday, zyvox. So, we are skipping this afternoon and evenings doses to see how he looks in the morning without it.
We have begun a vitamin D supplement since he cannot have dairy and his counts were a bit low. His dietitian also started him on a supplemental formula type product for 1+year old children. It has a prebiotic and amino acids that will help supplement his diet.
All in all, things are going very well and we are making great progress. He is a challenge, but the whole team here is very progressive and aggressive. We have a variety of doctors, from a to z, many wonderful nurses, a dietitian, psychologist, the list goes on and on. The research in this hospital is AMAZING, and the whole team never gives up. When something does not work one day, they are on to another idea the next day. We are busy none stop from sun up to sun down and then return to the Ronald McDonald House and share our experiences of the day with the other families here for the same program. It is a wonderful support system and we are holding each other up, no matter the trials of the day. I posted new pics on Caden's page, along with allergy testing from yesterday and today. Stay tuned!
Love to all, Jenny and Caden.